Blog

RAD Events

Welcome to RAD Events, the blog of the Rheumatoid Patient Foundation! Come here to read about current events in Rheumatoid Autoimmune Disease (RAD) aka Rheumatoid Arthritis (RA). RAD Events will cover Projects of the RPF national organization; Scientific breakthroughs in RA treatment or research; Efforts of members. You will hear from members of the Board [...]

RA Twist for Project 365

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By Tanya Martin In 2010 I tried to do Project 365 but I was unable to complete it as I started to flare in September. My shoulders were so stiff I could barely move my neck.  Last year I knew I was unable to even try Project 365 again. It is now 2012 and I [...]

Social Media and Friendships

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By Kim Byrne When I was diagnosed with Rheumatoid Arthritis and Crohns in May of 2010, I searched the Internet for answers to my questions. In my Internet search, I found some scary sites, and a lot of falsehoods. I decided to give up on the Internet. After a severe Crohns flare, I truly thought [...]

Comfort in Suffering

By Jodi Whisenhunt I’ve been blessed with Rheumatoid Arthritis (RA) since 1997. Because my symptoms were relatively mild and medication kept disease activity to a minimum, I lived in denial for many years. Sure, my joints hurt, but I was young and active and still in that youthful mindset that I was invincible. I continued [...]

First RPF Video Live on Our New YouTube Channel

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The Rheumatoid Patient Foundation (RPF) presents: The Faces of Rheumatoid Disease, a video testimonial from people living with Rheumatoid Autoimmune Disease (RAD). In the first video presentation of the RPF, patients explain in their own words How living with RAD has affected their lives. What they most want others to know about RAD. What they [...]

ACR2011 – Setting Things in Motion

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By Dana Symons I was very privileged to be able to attend part of this year’s American College of Rheumatology (ACR) Annual Scientific Meeting in downtown Chicago. The annual meeting brings thousands of doctors, researchers and other professionals from around the world to one place to learn and share the latest research and findings in [...]

How RPF Founder Kelly Young Won WebMD Health Hero Award

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Tanya Tudor worked as a critical care nurse for twenty years, volunteering during national disasters such as Hurricane Katrina. Tanya also loves traveling and visited to each of the contiguous 48 states in the U.S. Although living with Rheumatoid Disease has restricted some of these activities, she often finds ways to help others, especially fellow [...]

RPF Founder Kelly Young Interviewed on Mayo Clinic News Blog

Mayo News Blog interviewed Kelly about attending the ACR Scientific Meeting in Chicago as RPF presents its first exhibit representing the patient point of view. Mayo Clinic takes a pioneer role in healthcare.  It was true in the 1980’s when they Mayo brothers began a hospital on this principle: “The best interest of the patient [...]

ACR RA VIDEO PROJECT

The first week in November, the Rheumatoid Patient Foundation (RPF) will exhibit at the annual Scientific Meeting of the American College of Rheumatology. The meeting is one of the largest of its kind with about fifteen thousand medical professionals attending from around the world. There are also thousands of pharmaceutical industry, biotechnology, marketing, and research [...]

Rheumatoid Patient Foundation RA Survey

The RA Survey is an opportunity for patient voices to be heard. Our first survey asks basic questions about living with RA that many patients have never been asked. Our goal is to learn more about RA patients so that we can better represent their needs. The survey answers are anonymous. However, no one can [...]