By Shannon Ragland
Making a difference with the patient voice
In October, for the third year in a row, I was privileged to attend the American College of Rheumatology’s (ACR) annual scientific meeting as a volunteer with the Rheumatoid Patient Foundation (RPF). It is truly an honor to help represent the patient voice for people with Rheumatoid Disease (PRD) alongside a group of amazing volunteers, board members, and RPF’s founder, Kelly Young (a.k.a. RA Warrior) who inspire me so.
Kelly’s call to start the first organization ONLY for Rheumatoid Disease (RD) / Rheumatoid Arthritis (RA) has led to substantial progress in under three years. RPF board member Dana Symons did a great job covering this year’s RPF session on patient engagement and RPF research posters based upon patient-driven research for the RPF blog. Kelly also wrote more about the behind-the-scenes of getting to this point on her own blog. And this week, we're hearing from other members sharing about the reasons they've seen firsthand how important this work is.
The future is OUR vision and our mission
The Rheumatoid Patient Foundation is a 501-C3 non-profit organization by patients, for patients. Our mission is to improve the lives of people living with Rheumatoid Disease.
Our vision is a world where no one suffers from Rheumatoid Disease.
To achieve this objective, we, the RPF work with patients, physicians, researchers, and other rheumatology stakeholders to address the needs of patients and to create pathways to better care for PRD. There is much more work to be done.
The Rheumatoid Patient Foundation is volunteer-based, and we rely upon the support of members and donors in order to do this important work. We ask for your help today as part of the #GivingTuesday campaign to help us continue to improve the lives of people with Rheumatoid Disease (PRD) in the coming year.
To join our efforts, kindly click here to become a member of RPF.
To make a tax-deductible end of year donation, click here.
Add your voice and help our vision become a reality. Together we CAN do more.