Ivory’s Story

Ivory’s Story

Tell us a little about yourself and your family -- where you're from, what you do, what your interests are, etc. 
My name is Ivory. I am 32 years old and I have 2 children, my son's name is Nyiem, he’s 14 and my daughter's name is Zaynah she’s 10. I am also married and have been for 2 years and 9 months to my husband Kurtis. My father also has rheumatoid arthritis as well. I have currently started a non profit aiding women, I hold women empowerment events, I like to have fun, laugh and enjoy each day as it come. My interests are awareness. In any form in any way I love to make people aware of different things, illness or just advice in whole. I also love food and I love to host game nights.
When were you diagnosed with RA/Rheumatoid Disease?Sept 10, 2020
What was your first symptom?My first symptom was swelling and pain
What is the biggest way rheumatoid disease has affected your life?I was a writer. That became really difficult for me. I am currently in the middle of finishing my book but it has been difficult.
What has been your experience with treatments for rheumatoid disease?I’m just in the beginning of treatments but I’m still very uncomfortable. I get side effects from the meds which are frustrating so we’re figuring things out.
What do you want the public to know about rheumatoid disease?I would like the public to know that it’s hard but doable. Please be patient with yourself (it’s not your fault) and please be patient with your loved ones. Their are many symptoms that come along with this and please don’t take it lightly.
How have you worked to overcome challenges presented by rheumatoid disease?To be honest I haven’t yet. I’m still struggling quite a bit. Although I had some idea that something was going on and I’ve been in pain for a few years before an actual diagnosis, it’s still a bit of a struggle.
What have you learned through living with rheumatoid disease?I have learned to be patient. Also that on my good days still take it easy. Take my meds even when days seem to be good and to keep pushing.
What encouragement or advice would you give to someone who is newly diagnosed?Join groups. Do research. Take your time, breathe and give yourself room to feel and heal (mentally).
What else would you like to share? You can use this field to write your own story, apart from the prompts above.I have had many surgeries (16 to be exact). No necessarily due to RA however, it’s what led to further testing. I finally got a doctor who said “hey you’re way to young for all of these things to keep being wrong with your bones and joints, let’s do further bloodwork to make sure there aren’t any inflammatory factors” and what do you know there were. So I started to see a rheumatologist and he immediately felt my joints and saw the swelling and diagnosed me. He also told me that he don’t always just look at bloodwork because it could be hidden ( that was interesting to me, it was because most doctors turned me away because things didn’t turn up in bloodwork and I ended up being diagnosed with other things as well). So finally after surgeries starting from 2008, I have now been officially diagnosed with RA Sept 10, 2020. It blew my mind but I’m here and on this journey.
Share this post

Start typing and press Enter to search

Shopping Cart
Processing...
Thank you! Your subscription has been confirmed. You'll hear from us soon.
E-mail Newsletter Sign-Up
The Rheumatoid Patient Foundation is a volunteer-run non-profit organization. We rely on people like you to accomplish our goals and mission. Find out how you can help!
ErrorHere