RD Profile: Miranda

February 3, 2019 in Advocacy, Patient Input, Stories

By sharing our own stories, we can offer hope and encouragement for others and let people with Rheumatoid Disease know that they are not alone in this fight. If you're interested in sharing your story, please visit our story page.

My name is Miranda Johnson and I am from a small town in NC. I live with my two children ages 11 and 18 as well as my husband of approximately 19 years who are my support system. 

Although my RA symptoms started when I was around 8-9 years old, I was not properly diagnosed until I was 18 with a seropositive reading. With my early symptoms as a child, doctors would look at me as though I were a monkey in a cage only giving me antibiotics. Once I became older and symptoms progressed I did see physicians taking my disease more seriously. My RA is classified as severe/chronic effecting all joints and some organs. 

The best advice that I could give anyone who is newly diagnosed is not to be scared of the medications available today. RA is a progressive disease that needs a progressive approach. Much joint damage cannot be corrected so the quicker you get yourself into remission , the better. Stay active and positive the best you can. The world does not stop for ourselves having a bad day but if you are then cry, wipe your tears and remember that you are still going and that’s what counts. Any chance you get to advocate for our disease, take it! We need a cure! If a cure isn’t found in your lifetime then advocate that one is found for your children’s lifetime!